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 veryhotthread  Author  Topic: Food/Medicene reactions?  (Read 2398 times)
Babybear
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sad Food/Medicene reactions?
« Thread started on: Oct 14th, 2003, 11:31am »

Hi...I'm new to the board....I need help!!!

I'm so TIRED!!! Ever since my near fatal wreck in 03-2000...6 months after I started having extreme fatigue. Then it started with food reactions that are so bad I need the ER, or I feel that way...when I eat any fruit, white or wheat bread, potatoes, (any carbs or starches). Then the medicene with lactose, dextrose, glucose or sucrose the reactions are so bad!!!! Why is this? Is this because of my wreck and I have been diagnosed with FMS? The all-over pain and fatigue from these reactions are toxic!!

Does anybody ever have this too? What do you do to counter-react these 5-7 day reactionshuh?

Any suggestions as to what type of doctor I need to go to? Thanks a bunch!!! Pamela
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xx Re: Food/Medicene reactions?
« Reply #1 on: Oct 14th, 2003, 2:49pm »

Welcome Babybear,
I am going to bump this up so that some much more imformed than I will have a chance to see it and reply before it eases its way down to the bottom of the page.
There are many wonderful, knowledgeable people on this board so you should get some great replies to your post before too long. The pain and fatigue is horrible. I hope you have a good Doctor that understands FM!
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sad Re: Food/Medicene reactions?
« Reply #2 on: Oct 14th, 2003, 3:25pm »

Thanks so much!!! I'm so wore out with it. Just dont know what to do anymore...my diet is such a joke being I can't eat 90% of the stuff out there.. Carrots and peas kill me too!! I use to eat them all the time...wierd, huh?
Been checked for Diabetes and thyroid and I had neither!!! Thanks so much!!! Any responses will be great!!!!! Pammy
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xx Re: Food/Medicene reactions?
« Reply #3 on: Oct 14th, 2003, 3:42pm »

Hang in there Babybear. I am off work now and on my way home to a land of no internet. It is raining here in good 'ole southen Ohio and I am achy and tired and headed for the heating pad. This should bump you up again so that perhaps Madwolf or Jackie or some of the others who are so knowledgeable will have a chance to reply to you. Take Care! Fancy
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xx Re: Food/Medicene reactions?
« Reply #4 on: Oct 14th, 2003, 3:43pm »

Dear Babybear,
This happens to a lot of us, and I am so sorry you are going through this.
This can be treated, but it is complicated, and often takes a few alternative tests to get to the bottom of it. Because of this, the best option by far is to go and see a holistic doctor about this. Regular doctors don't have a clue of how to treat this problem, which is usually due to leaky gut syndrome, which in turn can be caused by many things.
Fibro dysregulates the nervous system, and many folks don't realize that your gut is intimately connected to your nervous system! That's why you often say you have a "gut feeling" about something.
Don't give up hope. I promise you a good holistic doc can help you turn this around. I know because I was once where you are now.
Klutzo
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xx Re: Food/Medicene reactions?
« Reply #5 on: Oct 14th, 2003, 3:58pm »

huh Klutzo!!! Thanks for responding!!! But is leaky gut syndrome what you had? I mean you had the same thing and now your betterhuh WOW!!!! What I would give to have this repaired!!! Thanks...Pammy

P.S. Any more suggestions would help!!!!!
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xx Re: Food/Medicene reactions?
« Reply #6 on: Oct 14th, 2003, 6:47pm »

Babybear welcome! I agree with Klutzo. You need someone who deals with this. Healing leaky gut will go a long way to easing those food reactions. If you are unable to find a practitioner under "holistic", contact Great Smokies Diagnostic Labs. They will emial you a list of docs that allow them to give their name out, that use their lab. They have a leaky gut test.

In the meantime, try to stay away from the foods you know you are reacting to. For the forseeable future, simplify your eating habits. When you shop for food, only shop the circumference of the store. Why? That's where you find the unprocessed food. Fresh fruits, fresh vegs, and meats without broth or flavoring added, look for an all natural sign on the label, are the foods to shop for. Wash all fruits and vegs really well, to get rid of any chemicals or preservatives.

My son has a corn allergy that developed into many more. Corn could be one of your allergies. It is in everything. Store bought bread, dextrose, most meds have it as a binder, most processed foods have it in it. Other common allergens are wheat, chocalate, strawberries, soy, peanuts, and milk. There are others but my brain is tired and recall is not good.

My son takes a supplement called Tri Salts for the reactions. It supposedly reduces the severity of the reaction. He takes a 1/2 tsp in 4 oz of water. I have also read that Alka Seltzer Gold will do the same thing. But I have never found the Gold in the stores. High doses of vit C will also supposedly help reduce the reaction. I was told to take it til diarrhea develops. I don't use that because its hard to find a vit C that isn't ascorbic acid which is from corn.

You can have a food reaction immediately or up to two weeks. Test the food groups with the most simple form. For example, wheat. Don't test bread. You could be reacting to the wheat, yeast, sugar or corn which could be in the bread. Use cream of wheat instead which is just straight wheat. My son can eat home made bread but not store bought.

Keep a food diary. See if there are any common ingredients to the foods you are eating and reacting to.

The good news is, my son is eating foods he thought he would never be able to eat again. Need to calm the GALT (Gut Associated Lymphatic Tissue) down and you will be feeling better.

Will try to answer any other questions. I have been dealing with food allergies for 5 years now.

Karen
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xx Re: Food/Medicene reactions?
« Reply #7 on: Oct 14th, 2003, 7:56pm »

I agree with Klutzo. A holistic dr. or naturapathic dr. would help you a lot. Don't give up. There are solutions to your problems. smiley
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xx Re: Food/Medicene reactions?
« Reply #8 on: Oct 15th, 2003, 07:07am »

I had to learn all of it on my own-------------& it can be done.

You will need to re-learn everything.
I started with a log or journal. Write everything you eat--drink-sleep--touch--do. I found--for me--the best way is to write as if writing to a friend. I found much more than if I wrote about the stuff. I would never have found all that I did if I had done it differently.

What kind of meds do you use??
What is your typical breakfast--we will start there & move on.
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smiley Re: Food/Medicene reactions?
« Reply #9 on: Oct 15th, 2003, 08:35am »

smileyWOW!!! You guys are great!!!! Basically, my breakfast is the only thing that gets me started and the ONLY thing I can handle is 3-4 eggs, turkey bacon and spelt bread...2 pieces. I can't have oatmeal, cream of wheat, or any cereal or any bread except spelt bread.

NO white flour of any kind and NO fruit!!! Even being in the bread isle at the market gives me a headache. Wierd huh? No pasta, no sweet veggies, no salt, no vinegar which just started....no mayo, mustard, ketchup.

This all started with toxic fatigue and then radiated into that plus TOXIC pain for 5- 7 days if I eat this stuff. YES!!! I just live on that breakfast every day, peanut butter only sandwich (spelt bread only), and chicken or hamburger type casserole usually with green beans or aparagus, spinach type stuff. Thats it!!!

But get this one....I can have only Blue Bell Vanilla ice cream and a coke every day. Just one coke. Now go figure on that one. Anyway...Im' going to take all your advice and go with it. The pain is so severe when I eat the things that I react to...I just never expected to end up like this. I can't even take the birth control pill anymore. Can't take any meds except my Lorcet 10 and if I did not have that I would be BACK in bed like I was for 2 years...no lie. Any more suggestions would be great....thank you all so much...Pammy wink
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xx Re: Food/Medicene reactions?
« Reply #10 on: Oct 15th, 2003, 08:47am »

Have you been DX'd with anything--or is that your input/feelings on the matter? What I am trying to say--have you been DX'd?

I'm wondering about celiacs disease??

OR is it chemically sensitive & have you been Dx'd?
« Last Edit: Oct 15th, 2003, 08:48am by JackieF » User IP Logged

Jackie F
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xx Re: Food/Medicene reactions?
« Reply #11 on: Oct 15th, 2003, 10:13am »

I have been Dx'd with FMS and Myofascial Syndrome. But the reactions I have never really had checked out due to work. I just have been doing all the research myself.

It is both chemical and food reactions. My organs hurt when I have these reactions too. Then when its all over it all goes away. The pain from reactions is also only on the right side where all the damage was done to me by the wreck. My damage was to my foot, ankles, knee, and right wrist and bladder. My left wrist was fractured also. Major big time wreck!!!!

Also..my meds are only Lorcet 10...can only handle that...anything gives me reactions. Each night I take Milk of Magnesia. Been like that for 20 years. And the only other thing is Protonix 10 mg. once a day.

The idea its Celiacs disease...well I checked into that and I dont fit that category. Im leaning towards the Leaky Gut Syndrome. That sounds more like what my symptoms are....huh?Love, Pammy
« Last Edit: Oct 16th, 2003, 09:47am by Babybear » User IP Logged

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« Reply #12 on: Oct 17th, 2003, 10:55am »

Bump!!! Would like more answers.....Pammy huh
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xx Re: Food/Medicene reactions?
« Reply #13 on: Oct 17th, 2003, 10:27pm »

Babybear,

A nurse practioner years ago, sold me a book called: Digestive Wellness by Elizabeth Lipski. It is a good book. I wished I had paid more attention to her and the book, I would have been healthier. Anyway, this is a paraphrase of the intro on Leaky Gut Syndrome:

"Leaky gut syndrome is really a nickname for the more formal term 'increased intestinal permeability', which underlies an enormous variety of illnesses and symptoms.

A healthy intestinal lining allows only properly digested fats, proteins, and starches to pass through so they can be assimilated. At the same time it also provides a barrier to keep out bacterial products, foriegn substances, and large undigested molecules.

When the interinal lining is damaged, substances larger than particle size- disease-causing bacteria, potentially toxic molecules, and undigested food particles- are allowed to pass directly through the weakened cell membranes. They pass to the blood stream and set up the antibody reaction. "

She goes on to list lots of conditions that are related to leaky gut.

The causes she lists as: chronic stress, dysbiosis (a term referring to the imbalance of yeast, good bacteria and bad bacteria in the gut), environmental contaminants, over consumption of alcohol, poor food choices (low-fiber, process foods, sugar etc) and medications ( NSAIDS, BCP, steriods and chemotherapy).

Great Smokies Diagnostic Labs does a CDSA (comprehensive diagnostic stool analysis). It checks for good bacteria, bad bacteria, yeast and parasites. Madwolf suggests having a QUANTATATIVE parasite test done. Great smokies only does a qualitative test. But anyway, then you treat what shows up in the report. My son has had yeast show and found out he had no good bacteria in his gut. So we treated the yeast with an antifungal and started him on probiotics to get some good bacteria back in his bowels. We also improved his diet. He doesn't tolerate digestive enzymes, but if he did he would be on them.

Supplements that help: Antioxidants such as Vit E, selenium, zinc, CoQ1, lipoic acid and vit C.
To help repair the mucosal lining: Glutamine (the book suggests 1 gram to 30 grams, I'd start low), vit A, vit C, pantothenic acid (vit B5), deglycyrrhized licorice (NOT IF YOU HAVE HIGH BLOOD PRESSURE), concentrated whey immunoglobulin concentrates and zinc. I am looking into Goatein Ig, because he is allergic to milk and I don't think the whey would be a good idea.

Don't start all of these supplements all at once. If you do and react, you won't know which one you are reacting to. Glutamine is the one I would start with first.

It's a good book and easy to understand. Worth the read. Hope the info helps.

Karen
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xx Re: Food/Medicene reactions?
« Reply #14 on: Oct 18th, 2003, 08:32am »

The best place to start is the diet you have. Not specifically you-but us in general.

If you have a poor diet--nothing will help.

This book sounds quite good. I really like the explaination of leaky gut--quite easy to understand.

Thanks for the info on it.

Food combining is a major problem for many of us.
This is where you--alone--will be able to figure it all out. I suggest a log or journal--this is about the only way--with our fog--that we can really lookat us & what is going on with us in the food area.

All those things you mentioned--they are sugars--dextrose--sucrose--etc--all sugars. Simply avoid them. They are crap anyhow. And medications are available with out them--diabetes and all must have them.

Odds are--your gut just hasn't healed from the wreck.

And then--of course--you do realize that your medication is MOST likely the culprit of you pains in the guthuhhuhhuhhuhhuhhuhhuhhuhhuhhuhhuh?? Actually--I'm betting you don't realize this.

You have been caught up in the pill circle/cycle.

The loricet for pain--the Protonix for the pain in the gut that harms you--but doesn't really protect you--as it should-IMHO. Then the Milk of magnesia--just isn't a good idea for a nightly thing.

Your gut is in bad shape.--count on it!!

IF you start with it--you will improve--if you go in the right direction.

We all get caught up in this viscious cycle of pills--the real challenge is to get off of it and yet find the right combination that really works for you!!

Sorry for the bad news--but until you know--you can't help yourself!!!!!!!!!
« Last Edit: Oct 18th, 2003, 08:39am by JackieF » User IP Logged

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